It's two weeks since I did an update and it's been a busy time.
We spent a lot of the first week talking to the support nurses, bringing them up to date with what had happened and talking things through with them. They've seen it all before so they are an extremely useful source of information, under funded and under resourced though unfortunately. I expressed the desire to see the scan pictures so I could visualise the tumour and have the opportunity to discuss the decisions that the team had made based on those scans.
This meeting took place on Monday with my Oncologist Consultant and it was fascinating to see the scans and discuss their diagnosis. At the end of that meeting I asked to see the Surgeon to discuss with him why operating was not an option. This meeting was arranged on Wednesday.
We expected to hear why he wouldn't operate but instead he said he was willing to go in and have a look with a view to cutting away as much of the tumour as possible to give the chemo more of a chance against a smaller mass. There were no guarantees, he may look and do nothing, in which case I will be in the same position I am now or I may, and I hope, get a better head start, with a view to buying more time for me in the future.
I didn't decide there and then, I've never had an Op, hate the thought of being in Hospital for 5-6 days, and I'm squeemish! However after a few stiff drinks and a night to sleep on it, I've decided to go ahead with the surgery. It's booked for the 8th January in St Michaels, so I'm going to have a damn good Christmas and New Year beforehand, actually it's already started.
Speak soon, when I have more info, things are moving on at such a pace.
Forgot the INR, it's stabalised pretty well now, shame I'll have to come off the Warfarin for the Op!
Sheila x
