Sheila's Progress

Sunday, August 10, 2008

Slapped wrists

for how long it is since the last update, it only felt like about a week. So what's been happening since the last update.

Jimmy Tarbuck was very good, it was the night the pier burned down, nothing to do with me Gov! The Playhouse is a very small theatre so it was just right in terms of atmosphere and ability to see facial expressions. We took binoculars but they weren't required. Eddie Large was in the audience so he got a few mentions during the night, couldn't see his wife, so that was OK. I had a wheelchair spot at the back of the stalls and it worked fine. We were amongst the youngest there though, which surprised me a little, I hadn't realised he had been around for so long.

On the 28th we went to the BRI about my ankle. The xrays confirmed nothing broken but it looked like I had done some soft tissue damage. They gave me a pair of metal crutches to help me walk and showed me how to use them. They also contacted Katie my physio to compare notes and hand me back to her. At least I felt better knowing there was no break or fracture.

On the 30th we went to the Marsden to discuss the new trial. Unfortunately it didn't go to plan as one of the drugs involved I had had before and when it was being given to me I'd had a bad reaction and it didn't work either! For some reason the Marsden were unaware of the this so I showed them the paperwork describing the reaction and the drugs and processes used to restore me. On that basis they were not prepared to put me on the trial, as the reaction could be life threatening. So all were disappointed and we are waiting for the next recommended trial. We will return on Wednesday to discuss, but it's 2 weeks lost, and you have to hope this one proves more suitable.

On the 4th I had the appointment with the Vascular Surgeon about my circulation in the right leg. He needed more info to decide whether to do anything, like scans from the Marsden, so I have to return in 4 weeks to him. His inclination was there was already a lot going on in that area that he may well leave and monitor, but he would investigate more first.

Tuesday 5th was my first 3 month Vitamin B12 injection, where did those 3 months go?

On the 7th I saw Katie my physio. She is concerned about my leg and with everything which is going on, she and no-one knows whether there will be any improvement or not in the future. I'm not prepared to think that it will be this bad once the DVT goes and the swelling disappears. So I am carrying on with exercises with a view to getting back to the gym soon, but I may be just kidding myself. Let's hope not. I am however going to consider an adapted car because I can't drive at the moment and it's a big loss of independence to me. The loss of mobility is the hardest thing to deal with, it's frustrating and hard work and you become totally dependent on somebody else, in my case Frank, and it's not an easy place for either of us to be.

Next stop Marsden on Weds and 2 days in Brighton, hopefully the sun will come out. Will update Blog on my return.

Sheila x

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