Hard to describe

This weeks visit to the hospital was an emotional rollercoaster. We had the good news that the tumour has stabalised, this means it has not grown or shrunk, but in tumour terms this is good news! So we were very pleased, our visits were extended to three weeks and we felt we would be able to do more at home in time for Christmas. Frank was ready to crack open the champagne (any excuse :-)).

However when we got the blood results later on, one of the markers which monitors liver function had shot up since last week. This means my liver is having to work overtime to deal with the drug. Bang, back down to earth, what did it mean? The first thing to do is monitor so we are back on weekly visits, the second is to refer back to the US, who are leading the trial, for guidance, so the trial could be in jeopardy for me. We were stunned after feeling so good to get this knock back. At the moment I'm still taking the drug and all we can do is wait and carry on.

The hotel worked well, so we are going to give in to the cold and skip the van until the weather warms up and try various establishments over the coming visits to find a favourite.

That's all for now, I'll keep you posted if I hear anything from the hospital, they are supposed to be phoning me, but I haven't heard anything yet.

Sheila x